raising children that are more politically active than myself

now i know, at 2 1/2 and 5 they are not technically politically active, but i am trying to expose them so that maybe they won't fear it as much as myself. on sunday i got a call that friends of ours were heading into town to go hear Barack Obama talk on Penn State's Old Main Lawn. Interesting. you're bringing the kids?!?! yeah, we thought it would be great to tell them one day that you saw him talk. hmmmm, i'm buying this. not something i would venture to do alone with both kids but this couple is doing it with their three kids so safety in numbers! i agree to join them and show them the way to campus. we expertly dodge lines and crowds and end up realtively close, and since i'm 5' 10" i actually have a vantage point. so far so good. gracie loves the "party", they're playing good music and she's cutting a little rug. between both families we brought enough snacks and enough toys to occupy the kiddos. i'm able to take in about 75% of the talk as i monitor, and i'm impressed, this is the most political things i've done in ages. i'm usually so cynical of politics in the first place, but i will say hearing something in person adds a little extra. he pushes that he doesn't take money from special interest groups and i have to say that's refreshing. with any result it was invigorating to take part, and hey, if he wins we can say we say him when....


my little politicians in the making

really, he's there, i highlighted him

nose ring etiquette?

OK, maybe the 2 people who would ever read this have found themselves in the same situation and would know how to handle it better. let's paint the picture, is a lazy Saturday, I'm out with my kids running errands and we stop for some lunch at a local pizza shop. but because my kids are up at the crack of dawn and had breakfast hours earlier they're ready for lunch at 11:00am! i stall a little but, still, we're inside sitting down for lunch no later than 11:20, so there's NO ONE else in there besides myself, my two kids, the young woman who works the front and the own just in the back flipping pizzas. the young woman, has a more alternative look, no big deal, she's super nice and friendly with the kids. she brings us coloring books and is quick with the order and very attentive. so after awhile we are well into our meal and she has been back and forth to service us, she turns to leave our table and head back to the cash register, which only a mere 6 feet away, and sweet little Gracie asks in her stage whisper, "WHAT'S IN HER NOSE, MOMMA?". she is, of course, referring to the U shaped piece of hardware between her nostrils with the balls on either end. much like you would see in a bull's nostril? that's the best image i can conjure up. i swallow my mouthful and pause. realizing i need to supply an answer or the question will surely be repeated (what doesn't get repeated by a 2 year old?!?!) also realizing that i am sure this young woman has heard the question and due to the size of the establishment we will never be out of earshot, i quickly answer, "it's like an earring in her nose", and change the subject by offering her more of her favorite Parmesan cheese on her pizza. i realize that could have gone much worse, but time froze for a second because really there wasn't a single sound in the whole place for minute and a half the question and answer took place.

so, do i just leave it at that? she took notice of the world around her. is it too early to say, no no no, honey, nose rings are not for you. because she asks for earrings when we pass Claire's in the mall. am i to expect a request for a nose ring now too? self expression is great, and earrings are appropriate at any age, but i think i have to draw the line at a nose ring. you have to go through some deep self exploration before deciding that's the choice for you. well, i guess i have to make better dining choices for us now, I'll look out for busier, nosier places!

what does it mean to be the parent of a child with special needs?

it means you're going to have to fight. it's almost one of the first things you learn. but i have to say we've had it pretty easy. no major battles as of yet. our biggest issue is calling the eye doctor to express that we're having concerns about our son's vision and we'd like to move up our regularly scheduled appointment, their response was we have an opening 5 months from now which is only one month sooner than our regular appt! frustrating? yes, battle? no. you just call "Super Pediatrician" and the eye doctors office calls back first thing the next morning explaining they have an opening tommorrow. but "Super Pediatrician" can't help us with this one. this is going to sound foreign to most but PA is considering adopting a "Consultative Model" for therapy services. the short of it is that instead of seeing your physical therapist, your occupational therapist, your speach therapist and your developmental teacher on average of an hour a week, EACH, you'll now only see the developmental teacher regularly and other therapists much much less as they will teach you everything you need to know, so you can essentially do it yourself. ha! DIY therapy, the title to my new book. why go to school to become a therapist when you can do it yourself! to big budget balancers in the government that sounds like a great savings, to a parent of a child with special needs it sounds like you're throwing us out to the curb..... before i rant and rave i'll sum up my feelings with my letter to those who can make a difference.

To Whom it May Concern,
We’re going to be parents! Oh how exciting. I always knew I wanted to be a mother. Now I’m at the right age, I married to a wonderful man, and it was so easy. I can’t wait for this little one to arrive. We’re going to go for walks, take them to the school bus stop, and go to baseball games in the summertime. I have so many plans…. The results from your amniocentesis are in. Yes, your baby has Down syndrome.

Millions of babies are born each year. There’s no prior schooling, you just have to be of reproductive age. It’s very natural. Many people plan on this their whole lives. No one plans on having a child with special needs. I was never educated in caring for a child with special needs. What am I going to do with a child with special needs? I’m going to love him. I’m going to care for him. I’m going to defend him until I no longer have breath in me. All those things come without trying. It happens when you learn they’re growing inside of you. It happens when you labor to bring them into this world. For me it was automatic. The best way to support him while he’s learning how to walk, the right way to spoon feed him so he doesn’t end up with an entire meal of sweet potatoes up his nose and down his chin, the right things to be teaching him so that we’re pushing his development and helping him strive to be his very best, those are the things that I’m now forced to learn. My peers watch their children crawl when children are supposed to crawl, walk when they are supposed to walk. Their children guide them to the next step, the next developmental milestone. Meanwhile my family continues to grow. Not only did I welcome a sweet baby boy, but I also gained a physical therapist, a speech therapist, an occupational therapist, and a developmental teacher. These loving, caring supporters swoop in to save my life and the future of my son. They provide me with the information I so desperately need. On a week to week basis. On a week to week basis my son is ever changing and needing new things. On a week to week basis I have new questions. On a week to week basis I add to my ever growing list of concerns. I already learn whatever I can from them and implement it into our daily routine, but I didn’t go to school for this. I have suddenly ended up in a crash course for early childhood development. Students in this field don’t go to class once a month. They don’t read a book on their own and get handed their diploma. Considering that most parents of children with special needs acquire quite an education from their children I cannot, in my wildest imagination, think of suggesting taking away the learning tools of these parents, the therapists. We already fight to enroll our children in typically developing programs. We already fight for the funding to give them everything that we possibly can to further development of these smart, loving, willing to learn children. This support team of teachers and therapists are the people who let us know what our children are capable of. They tell us to teach them, to love them, and support them and they show us how to do it. How are we supposed to help our children strive to be their very best if we’re left without our “textbooks”, without our “professors”, without our “education”.
I am striving to give my son all I can. He is entering Kindergarten, at a typical age of 5, with the ability to read and the love of learning. I will love him no matter what he accomplishes or who he ends up becoming. But if we’re looking for him to be his most productive self, someone who can give back to the community it’s imperative that you understand that he and I and my family would not be who we are today if it wasn’t for our “family”. Our “family” of physical therapists, speech therapists, occupational therapists, and developmental teachers, and the time they devote to our needs and to our education.

how could i NOT share this munchkin!

one of my "pushes" to start the blog is to share my craft, or shall i say craftS? i'm lucky enough to get invited into some families lives to take photos of their little ones. aaaaggh! you can just eat these kiddos up!! i just wanted to share some pics from my last shoot. shy little bugger to start, but the beauty of the in-home shoot is she eventually came around and was a perfect little model!

hmmm... what IS all this hoopla about blogging?

well it seems like everyone and their DOG has a blog these days. i was content to peruse other people's blogs daily until i came across one that incorporated their work into their blog. hmmmm.... good idea. mainly because there are little things that happen on a day to day basis that you don't get to share with long distance friends and family and rather than bombard their inbox i thought creating a blog would allow them to check it when they needed to procrastinate on *insert dreaded task, i.e. scrub toilets, do laundry, cook dinner*
ok, i'll leave it at this and see what else i can pick up on creating this mystical, must-have, blog!